Wow, I have not had a new blog post since before Gavin was born! It has been a very busy 6 weeks!
Gavin was born on December 4, 2013 at 12:43pm. He was 7lb 2oz and 17.5-18in long. For the first day or so Gavin required no oxygen, but as time went on he needed to be on cpap. On December 7th, Gavin was transported from Jefferson Hospital to AI DuPont Children's Hospital. He got his first pamidronate infusion January 10-12 and he did so well. After he got his infusions we tried to come him down to less air than the cpap but then decided it would be best for him to stay on that for stability at home. After 21 days in the hospital, we got to go home on Christmas Eve and we had an amazing Christmas with both of our sweet children!
On December 30th we woke up to Gavin in respiratory distress. His oxygen saturations were in the 70s and he was very pale. We called an ambulance and got him to the nearest hospital. Once the medic in the ambulance had Gavin on 5 liters of oxygen he finally gained his color and his oxygen went back up to the upper 90s. He was flown via helicopter back to DuPont where they monitored him until he had his next scheduled pamidronate infusion (which was scheduled for January 6-8th. The entire time Gavin was in the hospital he did amazingly well. The doctors ruled out viral infections and new rib fractures. We spoke to the respiratory therapist and she thought that the heater Gavin had at home for his cpap machine dried him out and plugged him up.
Gavin came home from his second stay in the NICU on January 9th after everything went perfectly with his second infusion. We have been home and doing incredibly well. We have gotten into a good routine and Gavin has been so happy at home.
A few days ago I finally was able to hold Gavin without his egg crate foam which he loved. I feel as though I am getting more comfortable with handling Gavin. Everything so far has been very great. We are hoping to be able to try bottle feeding with him soon. His next pamidronate infusion is scheduled for March 4-6th.
I promise I will update more often!!
Today will be Gavin's 8 week appointment! Wow, my little sweetie pie is EIGHT WEEKS OLD! Where has the time gone!? It seems like yesterday that he was born. At this appointment Gavin will have to get his regular weight/length checked and his routine 8 week shots. Also, because Gavin is considered a high risk case, he will also have to get a snyagis shot (it protects him against RSV getting too severe if he were to contract it). We will be going to his regular pediatrician for this appointment.
Also, here is some news that I have not really shared before to many people, not for any reason, just because I have never really brought it up. The last time Gavin was in the NICU he got his hearing tests done and the results came back that he had moderate hearing loss in his right ear and moderately severe hearing loss in his left ear. It did not come to me as a complete shock that there was hearing loss as he does not startle easily, but I did not think that it would be so drastic. On February 4th, Gavin will get another hearing test done to see if the same result arises and if it does he will be receiving hearing aids. He will get a loaner pair that day and will get his own set once they come in. It was determined that he will most likely need a Bone Anchored Hearing Aid (BAHA) on a soft band. 
So we have been home for a while and Gavin has been doing so incredibly that I haven't really updated much. I will post again tonight or tomorrow with how his appointment went! Time to get back into the swing of blogging on a regular basis!
